| 2/1/2012 to 5/31/2012 |
An On The Move Event! Ohio On The Move
PWSA OH
OH
This event is a Move-A-Thon. Participants make personal commitments to exercise during the challenge period with the goal of keeping active.
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| 4/27/2012 to 4/28/2012 |
Prader-Willi Alliance of New York, Inc. 22nd Annual Conference
PWANY (Prader-Willi Alliance of New York, Inc.)
NY
Learn from experienced professionals working with individuals with PWS who will present on wide-ranging useful and practical topics. Meet other families and feel
connected. Group rates for hotel accommodations are available at the Gideon Putnam Hotel in Saratoga Springs. For more information, please contact conference
coordinator Linda LeTendre, LMSW, at (518) 633-4781 or PWS@scolex.org.
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| 4/28/2012 to 4/28/2012 |
Oliva Italian Eatery in Honor of Emerson Lynn Parker
Oliva Italian Eatery
TX
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| 4/29/2012 to 4/29/2012 |
An On The Move Event! Walking for Prader-Willi Syndrome, Southern California
Prader-Willi California Foundation (PWCF)
CA
Online registration and donations are open for this event that will take place at Griffith Park in Los Angeles. We also have a Walking for PWS DVD available from the
PWCF office, or use the link, http://www.youtube.com/watch?v=UMr7qGUNZuI. Get those sneakers ready! Let's all walk for Prader-Willi syndrome. For more information,
click on the link or call PWCF at (800) 400-9994 (Toll-free within CA) or (310) 372-5053.
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| 4/30/2012 to 4/30/2012 |
West Virginia University MBA Class of 2012 Dinner for PWSA (USA)
Dye, Katherine
WV
WVU MBA Class of 2012 will be hosting a day at Applebee's in Morgantown. From open to close that day, 15% of profits from people who dined there will be donated to
PWSA (USA). There will be awareness with PWSA (USA) brochures and raffle tickets at the door.
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| 5/4/2012 to 5/6/2012 |
4th Annual Casting for a Cause
Torbert, Michelle, Prader-Willi Florida Association & TEVA (Tropical Everglades Visitor Association)
FL
Offshore and Inshore/Backcountry Fishing Tournament. For more information, please contact Michelle at thetorbert7@aol.com.
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| 5/5/2012 to 5/5/2012 |
An On The Move Event! Go the Extra Mile
McDougall, Amy for PWANY, Inc. (Prader-Willi Alliance of New York, Inc.)
NY
The walk/run event will take place at Onondaga Lake Park in Liverpool, NY from 9am-12pm. For more information, please call Prader-Willi Alliance of New York, Inc. at
800.442.1655.
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| 5/5/2012 to 5/5/2012 |
An On The Move Event! Michigan PWS "On The Move" Awareness Walk & Family Festival
PWSA MI
MI
This walk will be held in Kensington Metro Park in Milford, MI. Sign-in begins at 9:00am and the walk starts at 10:00am. Lunch will be provided. There will be an auction,
moon walk, face painting, children's games, raffles, and trophies for those who have PWS.
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| 5/5/2012 to 5/5/2012 |
An On The Move Event! Walking for Prader-Willi Syndrome, Northern California
Prader-Willi California Foundation (PWCF)
CA
Online registration and donations are open for this event that will take place at Crissy Field in San Francisco. We also have a Walking for PWS DVD available from the
PWCF office, or use the link, http://www.youtube.com/watch?v=UMr7qGUNZuI. Get those sneakers ready! Let's all walk for Prader-Willi syndrome. For more information,
click on the link or call PWCF at (800) 400-9994 (Toll-free within CA) or (310) 372-5053.
Click here
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| 5/5/2012 to 5/5/2012 |
An On The Move Event! Walking for Prader-Willi Syndrome, Central California
Prader-Willi California Foundation (PWCF)
CA
Online registration and donations are open for this event that will take place at Woodward Park in Fresno. We also have a Walking for PWS DVD available from the PWCF
office, or use the link, http://www.youtube.com/watch?v=UMr7qGUNZuI. Get those sneakers ready! Let's all walk for Prader-Willi syndrome. For more information, click
on the link or call PWCF at (800) 400-9994 (Toll-free within CA) or (310) 372-5053.
Click here
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| 5/5/2012 to 5/5/2012 |
Prader-Willi Derby
PWSA CO
CO
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| 5/7/2012 to 5/9/2012 |
International PWS Caretaker's Conference 2012: Trainings for PWS
International Prader-Willi Syndrome Organization
Wildbad Kreuth, Germany
This conference is for providers caring for those with PWS worldwide--all those who are involved in the daily life, or at least, regular care or therapy of all people with
Prader-Willi syndrome. The content of the conference will always be the development of international guidelines and standards regarding the direct care of those with PWS.
The content of this conference is focused on training. The key topics that will be discussed are nutrition/diet/exercise, social skills, sensory motor intervention,
communication, motivation, and curricular development. Please click on the link for more information.
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| 5/12/2012 to 5/12/2012 |
An On The Move Event! 2nd Annual PWS On The Move Walk-A-Thon
PWSA of WI, Inc.
WI
To take place in Fowler Park in Oconomowoc, WI. Complimentary lunch will be provided at the conclusion of the walk. There will also be a DJ at lunch.
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| 5/19/2012 to 5/19/2012 |
An On The Move Event! 2nd Annual 5K/10K Charity Run and Walk Presented by Navigon Financial
Navigon Financial Group, Inc.
NC
This charity run/walk will take place at the Wake County Tobacco Trails in Cary, NC. For more information, please contact Kristen Wind at 919.941.6235 or
kwind@navfin.com. All proceeds go to PWSA (USA).
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| 5/19/2012 to 5/19/2012 |
Fitness Fun-Raiser
UPWSA
UT
This event will take place at Olympic Park in Lehi from 11am to 2pm. For more information, please call 801.949.4609 or email deloresbk@comcast.net.
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| 5/19/2012 to 5/19/2012 |
An On The Move Event! Hunter Lens 3rd Annual PWSA Golf Event
Lens, John
MA
This is an eighteen hole par three course. The event will include prizes and an Awards Celebration Dinner at The Back 9 Golf Club in Lakeville, MA. For more event
information, please contact John Lens at jlens@comcast.net, 617.429.7664 or Lori Lens at llens@comcast.net, 508.923.0327.
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| 5/19/2012 to 5/19/2012 |
An On The Move Event! PWSA of Indiana "On the Move" 5K Walk/Run
PWSA of Indiana
IN
The event will take place at Fort Harrison State Park, 5753 Glenn Road, Indianapolis, IN 46216. It will be a 5K Run/Walk. A picnic will follow. For more information, please
contact Prader-Willi Syndrome Association of Indiana at amypfeiffer@comcast.net.
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| 5/19/2012 to 5/19/2012 |
An On The Move Event! Walk and Roll for PWS
Tenbrunsel, Amy
CT
This is a 5K walk at Middletown High School in Middletown, CT. Registration is at 9:00am and the walk begins at 10:00am.
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| 5/19/2012 to 5/19/2012 |
An On The Move Event! Florida "On the Move" Walk-a-thon for PWS
Prader-Willi Florida Association (PWFA)
FL
This 5K walk event from 8:30am to 11:30am will be in Oviedo, FL. There will be a BBQ picnic, DJ and games to follow for families affected by PWS from 12:30pm to
4:30pm at the Central Winds Parks and Recreation Center in Winter Springs.
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| 5/21/2012 to 5/21/2012 |
An On The Move Event! 2012 Prader-Willi Golf Scramble
PWSA MN
MN
The golf scramble will be held at Oak Glen Golf Course in Stillwater. The event will consist of 18 holes of golf, a golf cart, prizes, dinner and a gift bag.
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| 6/1/2012 to 6/1/2012 |
2nd Annual Jay Headley Memorial Golf Tournament to Benefit PWSA (USA)
Headley, Kerry
OH
This is a 4-person scramble to be held at Riviera Golf Club in Dublin, OH. Golfer check in and registration begins at 7:30am, shotgun start at 8am. Lunch provided. Awards
will be given out for longest drive, closest to the pin, overall lowest team score, and more! Proceeds benefit PWSA (USA).
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| 6/2/2012 to 6/2/2012 |
An On The Move Event! Walkin' With Wylee
PWSA OH
OH
This event will be held in Washington Courthouse, OH at the Christman Memorial Park from 11am-3pm. For more information and registration forms, please e-mail
pwsaohio@aol.com or call Jennifer at 440.716.0552.
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| 6/4/2012 to 6/4/2012 |
13th Annual PWSA of PA Golf Scramble
PWSA PA
PA
The event will be held at Meadowink Golf Course in Murrysville. Registration begins at 8am, shot gun start at 9am. Per person cost includes continental breakfast, lunch,
steak/chicken dinner, beverages, & door prizes. THIS EVENT IS SOLD OUT. Sponsors still needed or donations of gift cards & items for raffles. For more information,
please contact Mike Azzara at m_azzara@yahoo.com or Mike Fabio at mpfabio104@yahoo.com.
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| 6/10/2012 to 6/10/2012 |
Pony Rides for PWS in Honor of Carter Shingleton
Shingleton, Michele
CT
The event will be held at Oakendale Farm in Bristol, CT from 10am-4pm. Enjoy pony rides, face painting and sand art. There will be a Chunky Tomatoes truck and they willl
donate a percentatge of their sales from purchases for PWS that day. All event proceeds benefit PWSA (USA). For more information, please contact Michele at
mastjs@sbcglobal.net.
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| 8/25/2012 to 8/25/2012 |
12th Annual Charity Golf Outing
PWSA of WI, Inc.
WI
The foursome scramble event will be held at Windwood of Watertown beginning at 8:30am with a 9:00am shotgun start. Lunch, refreshments, prizes, goody bags, silent
auction and MORE!
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| 10/6/2012 to 10/6/2012 |
Midwest One Day Conference
PWSA of Indiana
IN
One day conference that will include some of the top PWS specialists at The Ruth Lilly Learning Center at Riley Hospital for Children. Speakers will include: Dr. Jennifer
Miller, Endocrinology: Mary Kay Zaccardi, IEP Planning; Gordon Homes, Financial Planner specializing in planning for kids with special needs; and one speaker TBA. We
will have fun events for the kids. There will be a meet and greet Friday, October 5, 2012.
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| 10/6/2012 to 10/6/2012 |
2nd Annual Nicholas' Festival: A Family Fun Day in Memory of Nicholas Tersigni
Tersigni, Lara for the Nicholas Tersigni Memorial Foundation
NY
This event will take place at the Green Chimneys in Brewster, NY. This beautiful day is our way of remembering not only Nicholas, but to also raise money to benefit
countless children with special needs in support of living a healthy life. Nicholas, who had PWS, was 3 years old when his life was tragically cut short on June 10, 2009.
We will spread awareness and search for a cure for Prader-Willi syndrome by supporting hospitals and organizations that assist in this effort, and this year, we will also
support Autism Speaks and Morgan Stanley Children's Hospital of New York -- Presbyterian, Columbia University Medical Center. Rain date is October 7th. For more
information, please email thenicholasfund@gmail.com.
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| 10/17/2012 to 10/20/2012 |
2nd International Conference on Hyperphagia
PWSA (USA)
LA
Save the dates. More information to follow. The 2nd International Conference on Hyperphagia (the hunger drive) will take place in Baton Rouge, LA. "Join top international
scientists in the field of appetite research for a thought provoking program."
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| 11/3/2012 to 11/3/2012 |
Planning For The Future: Strategies to Support Our Children's Lifelong Needs
PWSA of WI, Inc.
WI
The event will be held at the First English Lutheran Church, North Site (6331 North Ballard Road) in Appleton, WI. Child/Adult care will be provided. Topics will cover
guardianship, social security, SSI and other related issues.
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